Dear family and friends - so many of you have asked for an update on the boys and I know so many of you are faithfully praying for them and especially Ethan - thank you for asking and for continuing to pray -
Colin is doing very well - he is cute beyond and we think his smile is the best - he smiles with every thing he has and it makes us all smile and laugh - please pray for healing for his skin - he has very dry skin and eczema and itches - especially at night which interferes with his sleep -
Ethan is just a beautiful boy - he is so handsome - recently his physical therapist made a comment which has given me a new direction to pray for him - Ethan has benign hypotonia (low muscle tone) = he also was put back on a ng feeding tube because when he was sucking due to "immaturity" in his throat and vocal cord area he was aspirating and at risk for pneumonia - the only formula he can take by mouth is literally the thickness of honey and he cannot suck enough of it to live - thus the feeding tube - and along with the tube he has had lots of throwups, and has lost interest in sucking which is not uncommon - it has been very intense and challenging for Michelle and Allen - they are praying and we are praying that whatever needs to heal and mature in his body will be healed so that he can take regular milk again and that he will quickly learn to suck - he is scheduled for another "swallow" test at the end of this month - we are praying it will show a change - also, he does better with the tube in his right nostril - that also is not uncommon we are told that one side will be better - but it does have to be changed and this week he will probably have to be switched back and pray that he will tolerate it well and not throw up so much. the third issue he has - about a month after birth he manifested a muscle knot in his neck which is diagnosed as torticollis - probably from the position he was in the womb - that has shown very slow if any improvement and if not healed soon, doctors are talking surgery - which we so do not want him to have to go through - so that day the therapist remarked how the feeding issue keeps him from gaining strength and the hypotonia and neck issue are all three working against him - that reminded me of the scripture in Ec 4:2 which says "... a threefold cord is not quickly broken", so would you pray with us that this threefold cord of torticollis, hypotonia, and eating would be broken from working against Ethan and that each of these things will begin to heal - he has an appointment next Wednesday, the 20th, with a pediatric neurologist who specializes in neuromuscular issues - please pray that God would direct her in any testing and for a good report - as many of you know many tests have been run on Ethan and so far, no bad diagnosis has been spoken or found - and we are grateful for every negative test result. Everyone has said that he will be developmentally slow but that he will get there - I am thankful for that but also want you to know that the family is crying out for and believing for his healing - we would love to see a "suddenly" and thank you for praying with us - blessings to all, lynn
Colin is doing very well - he is cute beyond and we think his smile is the best - he smiles with every thing he has and it makes us all smile and laugh - please pray for healing for his skin - he has very dry skin and eczema and itches - especially at night which interferes with his sleep -
Ethan is just a beautiful boy - he is so handsome - recently his physical therapist made a comment which has given me a new direction to pray for him - Ethan has benign hypotonia (low muscle tone) = he also was put back on a ng feeding tube because when he was sucking due to "immaturity" in his throat and vocal cord area he was aspirating and at risk for pneumonia - the only formula he can take by mouth is literally the thickness of honey and he cannot suck enough of it to live - thus the feeding tube - and along with the tube he has had lots of throwups, and has lost interest in sucking which is not uncommon - it has been very intense and challenging for Michelle and Allen - they are praying and we are praying that whatever needs to heal and mature in his body will be healed so that he can take regular milk again and that he will quickly learn to suck - he is scheduled for another "swallow" test at the end of this month - we are praying it will show a change - also, he does better with the tube in his right nostril - that also is not uncommon we are told that one side will be better - but it does have to be changed and this week he will probably have to be switched back and pray that he will tolerate it well and not throw up so much. the third issue he has - about a month after birth he manifested a muscle knot in his neck which is diagnosed as torticollis - probably from the position he was in the womb - that has shown very slow if any improvement and if not healed soon, doctors are talking surgery - which we so do not want him to have to go through - so that day the therapist remarked how the feeding issue keeps him from gaining strength and the hypotonia and neck issue are all three working against him - that reminded me of the scripture in Ec 4:2 which says "... a threefold cord is not quickly broken", so would you pray with us that this threefold cord of torticollis, hypotonia, and eating would be broken from working against Ethan and that each of these things will begin to heal - he has an appointment next Wednesday, the 20th, with a pediatric neurologist who specializes in neuromuscular issues - please pray that God would direct her in any testing and for a good report - as many of you know many tests have been run on Ethan and so far, no bad diagnosis has been spoken or found - and we are grateful for every negative test result. Everyone has said that he will be developmentally slow but that he will get there - I am thankful for that but also want you to know that the family is crying out for and believing for his healing - we would love to see a "suddenly" and thank you for praying with us - blessings to all, lynn
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