Allen and I are so thankful for the prayers, food and help that our church family has done for us. We have felt completely supported in so many ways and are even humbled by the number of you that don't really even know us (some not at all) but have been willing to give anyway. Your generosity has been a blessing.
Colin...as Mom says, is doing very well. We think he is "stinking" cute! The skin issue...I keep thinking it COULD be a milk allergy, but am hesitant to change his formula to soy. We all know that internet research can be both good and bad. The 'stuff' I have seen on giving soy to infant boys isn't good...there is a lot of controversy over the amount of estrogen in soy and what that can do to boys during puberty and adulthood. Please pray for wisdom..and a CLEAR, RIGHT answer for his skin. Healing would be the best. Second to that I will take a non-medical cream or new formula or SOMETHING to give him relief. The other problem I have is putting too much cortisone on his skin. It doesn't seem to help all that much and it is a medicine, nothing does to be honest. I don't want to give either of the boys medicine unless it is absolutely necessary.
Ethan...sweet, sweet Ethan! We have made a change in his position while he eats and so far, so good. He still has spit-ups...but the throw-ups are less, even with the tube in the dreaded left nostril. The best news I can give you is that starting this past Saturday (I don't believe in coincidences so if this is when you got Mom's email and started praying, all I can say is YAY!), Ethan has just been showing improvements that Allen and I are so pleased about. We started earlier this month increasing the amount of formula. It is very frustrating because when he was throwing up so much, the first answer was "don't feed him so much." That never seemed to solve the problem and I think that ultimately we just haven't been feeding him enough. He still has times of "where are you Ethan" where he just doesn't seem alert or care to move. But those times are less and the movement and talking and interaction ARE better! His physical therapist said yesterday "a few weeks ago I was really worried about him, but not any more!" She was very pleased at how he is not only holding his head up, but moving it around (even SOME to the left on his own). He is also starting to finally pick up his legs more. He has been moving them back and forth, but only this weekend have we seen him actually lifting his legs off of the ground (or whatever he is on). Last night I grabbed his feet to pick them up and let him "hold his toes." He straightened his legs out strong, lifted up his butt and I could NOT believe how strong he felt!
So keep on keeping on with us...we want you right there with us when we rejoice as we pull the tube out for the last time (Mommy can't WAIT!)! You are precious to us and we thank you from the bottom of our hearts!
Colin...as Mom says, is doing very well. We think he is "stinking" cute! The skin issue...I keep thinking it COULD be a milk allergy, but am hesitant to change his formula to soy. We all know that internet research can be both good and bad. The 'stuff' I have seen on giving soy to infant boys isn't good...there is a lot of controversy over the amount of estrogen in soy and what that can do to boys during puberty and adulthood. Please pray for wisdom..and a CLEAR, RIGHT answer for his skin. Healing would be the best. Second to that I will take a non-medical cream or new formula or SOMETHING to give him relief. The other problem I have is putting too much cortisone on his skin. It doesn't seem to help all that much and it is a medicine, nothing does to be honest. I don't want to give either of the boys medicine unless it is absolutely necessary.
Ethan...sweet, sweet Ethan! We have made a change in his position while he eats and so far, so good. He still has spit-ups...but the throw-ups are less, even with the tube in the dreaded left nostril. The best news I can give you is that starting this past Saturday (I don't believe in coincidences so if this is when you got Mom's email and started praying, all I can say is YAY!), Ethan has just been showing improvements that Allen and I are so pleased about. We started earlier this month increasing the amount of formula. It is very frustrating because when he was throwing up so much, the first answer was "don't feed him so much." That never seemed to solve the problem and I think that ultimately we just haven't been feeding him enough. He still has times of "where are you Ethan" where he just doesn't seem alert or care to move. But those times are less and the movement and talking and interaction ARE better! His physical therapist said yesterday "a few weeks ago I was really worried about him, but not any more!" She was very pleased at how he is not only holding his head up, but moving it around (even SOME to the left on his own). He is also starting to finally pick up his legs more. He has been moving them back and forth, but only this weekend have we seen him actually lifting his legs off of the ground (or whatever he is on). Last night I grabbed his feet to pick them up and let him "hold his toes." He straightened his legs out strong, lifted up his butt and I could NOT believe how strong he felt!
So keep on keeping on with us...we want you right there with us when we rejoice as we pull the tube out for the last time (Mommy can't WAIT!)! You are precious to us and we thank you from the bottom of our hearts!
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